Transitioning to adult care checklist for patient with epilepsy

The below items are recommended to be completed 3-6 months before anticipated transition date.

  • Release of Information signed with Children's

  • Your Children's provider will assist you in identifying a new provider and discuss the transition with you and your child

  • Updated patient demographic data shared with Children's

  • Medical information prepared

    • Health Summary

    • 3 recent routine visit notes

    • Green laboratory form

  • Eligibility documents

    • Insurance card

    • Picture ID

    • Proof of residence (utility bill with postmark) 

    • Proof of income, or letter of support

  • Initial appointment with adult provider made

Transition skills

In addition to the checklist items above, it is important for you and your child to complete the recommended transition skills. Your Epilepsy Care Team will work with you and your child to address each goal.

Time 1

(to be completed by Age 14-17)

Skills to be mastered:

  1. Interact directly with health care team (e.g. answer questions, participate in decision-making).

  2. Know what type of seizures you have.

  3. Be able to describe your recent/current symptoms.

  4. Name your medications and their doses including folic acid and vitamin D.

  5. Name the main purpose of each medication.

  6. Be able to give at least a brief description of your medical history. Demonstrate awareness of health-related rights (e.g. privacy, communication, etc).

  7. Consider whether to sign release of information to parent/guardian.

  8. Be able to independently obtain refills.

  9. Be able to identify members of health team/ how to contact them.

  10. Verbalize when/how to call health care provider.

  11. Be able to make own appointments.

  12. Verbalize when/how to access urgent care.

  13. Be able to set up transportation for appointments

Tips for learning Time 1 Skills