Coordinated, comprehensive care
A dilated aorta can affect your child’s body in many ways. Children with dilated aortas caused by a connective tissue disorder may need to see an eye doctor, dentist, orthopedic specialist and/or surgeon. Keeping track of all the specialists and appointments can be overwhelming and time consuming. We’re here to help.
Our team will handle all the referrals your child needs and set up all their appointments. Plus, we keep track of the reports from each appointment and talk to all your doctors directly about your child’s treatment plan. We see the whole picture of your child’s health.
Fast treatment for serious complications
A dilated aorta is something your child is born with. It can get worse over time. The earlier your child receives treatment, the more likely they are to avoid complications – and to live a healthier, fuller life. Your child’s first visit with a cardiologist will be a detailed, thorough, one-hour appointment. Here’s what you can expect:
Physical exam, where we’ll ask you about your child’s medical history and your family’s medical history.
Echocardiogram, which is an ultrasound of the heart where we can see the aorta.
MRI or CT scan, that takes a detailed image of the entire aorta, which helps us monitor for areas of dilation.
Genetic testing, which can identify changes (also called variants) in your child's chromosomes that may have caused the dilated aorta.
Compassionate counseling and support
If your child has a dilated aorta caused by a connective tissue disorder, they will need to see several doctors throughout their life for therapy, testing and treatment. These conditions are very rare and you might feel isolated and not know where to turn for help. Our social workers and psychologists are here to support you and your child. We can help your family come to terms with your child’s condition and to plan for a life filled with meaning.
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